Kimberley Waara’s son Ethan was diagnosed in utero with a severe, life limiting heart defect. After his birth Kimberley, her husband and baby Ethan moved directly into Roger Neilson house, a pediatric palliative care facility in Ottawa. They spent a beautiful week with their son before he died at seven days of age. Ethan now has a little sister, Zoe, who knows all about her big brother.


We had to make difficult decisions
Our first introduction to pediatric palliative care
Our coping strategies
Ethan’s birth and his death
Legacy making during my pregnancy
Legacy making after Ethan’s birth