Dana
Dana is the mother of Jaxon and Savannah, living near Cornwall, Ontario. Jaxon was born with Trisomy 21 and he died in 2019, at the age of fifteen.
Videos
My son Jaxon
I had support but had to be strong on my own
How Jaxon's illness affected his sister
We lived a pretty regular life for five years
School was Jaxon's happy place
Jaxon's last days of life
Palliative care is about quality of life
Jaxon had an amazing care
Respite helped me care for myself
Working out helped my anxiety
I was anxious about something happening to Jaxon
The first celebrations are the hardest
Grieving the death of my child
What Jaxon taught me and advice I would share with other parents
My daughter's childhood was very affected by having a sick brother
Yes, I was a helicopter parent but I still let Jaxon make some choices
I didn't want people to feel sorry for me
I didn't want to always talk about sickness
Living with constant worry was hard
Figuring out who I am after Jaxon's death
Jaxon lived his life very well
Respite workers helped me manage as a single, working parent